Health & ME/CFS

Valcyte: The (Slightly) Scary Adventure Begins

(Interested in how this adventure turned out? See my 2nd anniversary recap to find out!) Yesterday evening, I picked up my prescription for a new medication, Valcyte. Valcyte is an anti-viral, similar to Valtrex, which I've taken for years. Both are effective against all the viruses in the Herpes family, and there are a lot… Continue reading Valcyte: The (Slightly) Scary Adventure Begins

Health & ME/CFS, This Crazy Life

Counting the Blessings of 2010

This Christmas Eve, I'm counting my blessings - these are the gifts I've received this year: My mother became very ill, but is thankfully recovered from her two hospitalizations and surgery, and is getting her heart issues sorted out. I'd be lost without her, so I'm so glad she's still around! And, in the process… Continue reading Counting the Blessings of 2010

Health & ME/CFS, This Crazy Life, Venting!

Sick & Tired

They say you shouldn't blog when you're angry. And I'm angry. Probably mostly from the amount of Ritalin I've taken today, but also a lot of built up anger. Built up over years. I need you people, my family, to understand something. And it seems like, with one exception, you don't. What I need you… Continue reading Sick & Tired

Health & ME/CFS, Migraines, Venting!

Doctors Who Want Power Over

So I saw my neurologist yesterday. It was interesting. I've never liked her. I like her even less now. I was scheduled to just get an Occipital Nerve Block (ONB), which is injections into the back of the head and side of the neck with a local anesthetic and a type of cortisone called betamethasone.… Continue reading Doctors Who Want Power Over

Health & ME/CFS, Migraines

“Now why don’t she write?” – July Events

Bet you're wondering "Now why don't she write?" (obscure reference to Dances with Wolves...) Well, because it's been a really excruciatingly painful, odd, weird, interesting, frightening, and ultimately enlightening, month. I managed not to die of an aneurysm. Not to have a stroke. And not to have a heart attack. I figured out what was… Continue reading “Now why don’t she write?” – July Events

Health & ME/CFS, This Crazy Life

A rollercoaster

That's what it is - a rollercoaster. Even slow, deliberate, willing narcotic withdrawal is a rollercoaster. Sleep for days, then insomnia every night all night. Awake until dawn. Hungry at 5 am, this morning I made food. You don't know how profound a statement that is. It was only a sandwich. But I can't remember… Continue reading A rollercoaster