I went to my PCP (that's Primary Care Provider for those who don't know) last week for my monthly visit, and a new nurse takes me back to the room. It went something like this... Her: "You're here for a follow-up for...?" Me: Chronic fatigue Syndrome. Her: Oh, fatigue. So you're tired a lot. (As… Continue reading “Chronic. Fatigue. Syndrome. It’s An Illness.” – May 12: ME/CFS Awareness Day
Tag: fatigue
In Which I Explain and Complain a Lot
There have been a number of questions friends have been asking that haven't gotten answered, so here goes, in no particular order: Disability: I have appealed my Disability rejection to the highest level in Social Security, about two months ago. They can take a long, long, time to rule on things, apparently - up to… Continue reading In Which I Explain and Complain a Lot
Ash’s Advice: Part 2 – Your Life Is In YOUR Hands
Note: Ash's Advice is written by, me, Ash, a long-time patient with CFS/CFIDS/FMS/Chronic Lyme, etc. I am not a doctor, and nothing written here should be construed as medical advice. These are simply my musings - what I wish I was able to tell my younger, healthier self: the person I was before CFS/FMS pretty… Continue reading Ash’s Advice: Part 2 – Your Life Is In YOUR Hands
Unique Choices
Those of us with severe CFS/FMS/chronic Lyme, etc., face some unique choices that the healthy population doesn't face. Anytime we do something, beyond laying in bed or the bare minimum of necessary actions (going to the bathroom, taking the dog out, making a cup of tea), we do it knowing there will be a price… Continue reading Unique Choices
Ash’s Advice: Part One of Many To Come
Recently, friends have suggested that though I may be sick in body, I'm still a good writer, and that maybe through my writing I could find a way to help other people, especially other women, who are going through the trials and tribulations of chronic illness, whether it's called: Chronic Fatigue Syndrome (CFS) Myalgic Encephalomyelitis… Continue reading Ash’s Advice: Part One of Many To Come
The Aftermath
There is a part of my life that only one person sees and understands: Rhiannon. I call it "The Aftermath." Today we ran errands. We left at 3:30 & were home by 7. Three and a half hours, made possible by ritalin (a stimulant to give me a false sense of being functional) and my… Continue reading The Aftermath
Wolfdreams.... 