I called Rhiannon, a touch of panic in my tone of voice. I have screwed up. She made me a power smoothie before she left for shopping, and I drank it too fast. "I didn't even drink the whole thing, only half!" I explained. Now, the icy drink sits in my stomach, and its chill… Continue reading 2 Hours With ME, and Dysautonomia: May 12th, International ME/CFS Awareness Day
Lightbulb Moments: Topamax, Meds, Starvation and Adrenal Issues
The past few days have seen two important "lightbulb" moments happen for me, which I'm sharing here because I know many of my fellow patients are facing similar problems and on similar meds... The ER Visit The Wasn't: Late yesterday afternoon, I started feeling decidely "off," even for me. I was brewing a hormonal migraine,… Continue reading Lightbulb Moments: Topamax, Meds, Starvation and Adrenal Issues
For some time now, since the "protein wasting," also called muscle wasting, and unintentional, major weight loss started, two years ago or so, we've been refering to my overall health status as "precariously balanced." When I say "we," I don't just mean Rhiannon & I, but also, my doctors. We are a team, working collaboratively… Continue reading Teetering
And Then, Everything Changed, Part 1
The last 6 weeks or so have seen some massive changes happen in my life, some for the better, some for the (much) worse. I had planned a nice long post detailing the adrenal exhaustion, stage 3, I was diagnosed with, and how that is so common in my fellow ME/CFS patients, but since I'm… Continue reading And Then, Everything Changed, Part 1
We Know the Enemy, or ME/CFS/FMS Explained Again.
Wee little note - this is out of date. I started this blog in 2010, for my family for the most part. To help them understand my illness, and help me work out my thoughts on it and also other matters. Since 2010 I've learned a lot of things about the nature of my illness,… Continue reading We Know the Enemy, or ME/CFS/FMS Explained Again.
Ash’s Advice: Part One of Many To Come
Recently, friends have suggested that though I may be sick in body, I'm still a good writer, and that maybe through my writing I could find a way to help other people, especially other women, who are going through the trials and tribulations of chronic illness, whether it's called: Chronic Fatigue Syndrome (CFS) Myalgic Encephalomyelitis… Continue reading Ash’s Advice: Part One of Many To Come