There is a Wisdom, Buried deep in my bones, A Gift, Passed down to me, From Ancestors of Old. Today we call it a curse, And fight and rail, We give it names, Arthritis and Migraine, And call the wild Wisdom, By another name: Pain. But, is it, really, Just the song my bones knows?… Continue reading The Song In My Bones (Dealing With Pain)
Tag: pain
2 Hours With ME, and Dysautonomia: May 12th, International ME/CFS Awareness Day
I called Rhiannon, a touch of panic in my tone of voice. I have screwed up. She made me a power smoothie before she left for shopping, and I drank it too fast. "I didn't even drink the whole thing, only half!" I explained. Now, the icy drink sits in my stomach, and its chill… Continue reading 2 Hours With ME, and Dysautonomia: May 12th, International ME/CFS Awareness Day
Coping: One Breath, One Moment
A post about getting through those moments you ask yourself: "What fresh hell is this?", or beg, "Not again, please!" and, "When Food Is The Enemy" Recently, yesterday I guess it was, but it seems eons ago, I managed to poison myself. Not in the typical, swallow something toxic way, of course. No, not me.… Continue reading Coping: One Breath, One Moment
The Harsh Reality of CFS
Note: On Monday I wrote three messages to my mother, in typical Aspie style - I held nothing back. I've clipped a bit here, but it's mostly intact. I'm posting it here in case you want to know what it's really like. Be forewarned: my mother spent two days in the hospital after reading this… Continue reading The Harsh Reality of CFS
Always Counting Spoons
Yesterday, a dear friend shared something with me that touched me so deeply that, for a time, I was wordless, unable to express the complex emotions roiling around inside. For the rest of this post to make sense, I need you to read it, too. Really. It's long, and about lupus, but you can insert… Continue reading Always Counting Spoons
Not Simple At All
My mother has written the words, "Life can be very complicated..." several times on my blog as a comment. Yes, Mom, life can indeed be very complicated, as I've learned throughout the years. Some things seem simple, or like they should be simple, but then they turn out to be very complicated. It seemed simple,… Continue reading Not Simple At All