Health & ME/CFS, Migraines

The Song In My Bones (Dealing With Pain)

There is a Wisdom, Buried deep in my bones, A Gift, Passed down to me, From Ancestors of Old. Today we call it a curse, And fight and rail, We give it names, Arthritis and Migraine, And call the wild Wisdom, By another name: Pain. But, is it, really, Just the song my bones knows?… Continue reading The Song In My Bones (Dealing With Pain)

Health & ME/CFS, Migraines

How I Ruined Election Night But Learned Something Valuable In The Process

We had been following The Election - you know, the one billed as the most important in decades - for months. Sifted thru dozens of mailings. Watched all the debates. Read article after article. Signed petition after petition. Seen hundreds of facebook postings about it. It had all come down to this moment. We were… Continue reading How I Ruined Election Night But Learned Something Valuable In The Process

Migraines, This Crazy Life, Venting!

A Kick In The Face

Warning: there will be foul words in this post. I don't use them often, but this is just the final straw. Venting ahead... As you, my friends, know, this Summer has been hell. Things got even "hotter" yesterday with the delivery of a letter from social security - and it wasn't the kind of letter… Continue reading A Kick In The Face

Health & ME/CFS, Migraines, This Crazy Life

Teetering

For some time now, since the "protein wasting," also called muscle wasting, and unintentional, major weight loss started, two years ago or so, we've been refering to my overall health status as "precariously balanced." When I say "we," I don't just mean Rhiannon & I, but also, my doctors. We are a team, working collaboratively… Continue reading Teetering

Health & ME/CFS, Migraines

Shock and Dismay: Re-visting Tick-Borne Diseases

Last week, I saw my LLMD (Lyme Literate MD) again, and left after spending an hour with her, in shock & dismay. Where neither my PCP or neurologist have any ideas really where else to go with my deteriorating health, other than the "band-aid" approach - treating the symptoms as best we can - my… Continue reading Shock and Dismay: Re-visting Tick-Borne Diseases