For some time now, since the "protein wasting," also called muscle wasting, and unintentional, major weight loss started, two years ago or so, we've been refering to my overall health status as "precariously balanced." When I say "we," I don't just mean Rhiannon & I, but also, my doctors. We are a team, working collaboratively… Continue reading Teetering
Tag: exhaustion
We Know the Enemy, or ME/CFS/FMS Explained Again.
Wee little note - this is out of date. I started this blog in 2010, for my family for the most part. To help them understand my illness, and help me work out my thoughts on it and also other matters. Since 2010 I've learned a lot of things about the nature of my illness,… Continue reading We Know the Enemy, or ME/CFS/FMS Explained Again.
The Stranger In The Mirror
Standing naked, I gaze into the mirror. So many changes have happened to my body, I barely recognize the person who stares out at me. Time and illness have taken their toll. I will be 48 years old this month. Late forties. Almost fifty. My mind struggles to wrap itself around the concept. There is… Continue reading The Stranger In The Mirror
In Which I Explain and Complain a Lot
There have been a number of questions friends have been asking that haven't gotten answered, so here goes, in no particular order: Disability: I have appealed my Disability rejection to the highest level in Social Security, about two months ago. They can take a long, long, time to rule on things, apparently - up to… Continue reading In Which I Explain and Complain a Lot
Ash’s Advice: Part 2 – Your Life Is In YOUR Hands
Note: Ash's Advice is written by, me, Ash, a long-time patient with CFS/CFIDS/FMS/Chronic Lyme, etc. I am not a doctor, and nothing written here should be construed as medical advice. These are simply my musings - what I wish I was able to tell my younger, healthier self: the person I was before CFS/FMS pretty… Continue reading Ash’s Advice: Part 2 – Your Life Is In YOUR Hands
Unique Choices
Those of us with severe CFS/FMS/chronic Lyme, etc., face some unique choices that the healthy population doesn't face. Anytime we do something, beyond laying in bed or the bare minimum of necessary actions (going to the bathroom, taking the dog out, making a cup of tea), we do it knowing there will be a price… Continue reading Unique Choices
Wolfdreams.... 