Warning: there will be foul words in this post. I don't use them often, but this is just the final straw. Venting ahead... As you, my friends, know, this Summer has been hell. Things got even "hotter" yesterday with the delivery of a letter from social security - and it wasn't the kind of letter… Continue reading A Kick In The Face
ME/CFS patients are often under a great deal of pressure to "stay positive" and told to "visualize yourself healthy and strong again, and you will be." This type of "magical thinking" puts an unfair burden on a person who is already suffering terribly. If they do not improve, then they may be blamed by others… Continue reading Positive/Magical Thinking, Reality, Acceptance, Goals and Dreams
For some time now, since the "protein wasting," also called muscle wasting, and unintentional, major weight loss started, two years ago or so, we've been refering to my overall health status as "precariously balanced." When I say "we," I don't just mean Rhiannon & I, but also, my doctors. We are a team, working collaboratively… Continue reading Teetering
Today I want to share something very special with you - a letter my daughter, Rhiannon, wrote to the Social Security Disability Appeals Council, about growing up with a sick mom, and the changes over the last couple of years. She has quite the voice, my daughter. by Rhiannon To whom it may concern: I… Continue reading Guest Post: Rhiannon Tells It Like It Is – to the SSDI Appeals Council
Earlier this week, a Facebook page I "Like" put up a pic that seemed to have been written by a fellow ME/CFS/FMS patient. I'd show it to you, but it appears to have been removed, likely because it was a little too honest. EDIT: thanks to Barbara, I have it! The response to this was… Continue reading When Its Not All Puppies and Kittens
My mother said to me the other day that my brother can't seem to wrap his mind around the concept that I'm really sick and there's really very little that can be done about it. He seems to still think that "if I only went to better doctors or the right hospital, they could figure… Continue reading We Know the Enemy, or ME/CFS/FMS Explained Again.