Clarity, that feeling of peace inside, of comprehension, of acceptance of what is and what will be, often comes in our darkest hour, or in darkness itself. It hides from the light of day, and waits for the dark of night, before revealing itself to us. We grasp it gently, lest it be lost, and… Continue reading Acceptance: Clarity Comes In Darkness
Life with CFS/FMS/chronic Lyme and other Neuro-Immune Diseases tends to eventually become incredibly boring, as your health declines steadily, more problems erupt, and you find yourself confined more and more often to bed, isolated, in pain, sick & tired. Memories fade, the months become years, and pass in a haze of misery. But sometimes, things… Continue reading June: Tumultuous Times
Standing naked, I gaze into the mirror. So many changes have happened to my body, I barely recognize the person who stares out at me. Time and illness have taken their toll. I will be 48 years old this month. Late forties. Almost fifty. My mind struggles to wrap itself around the concept. There is… Continue reading The Stranger In The Mirror
Today is the annual International Day of Visibility for people living with "invisible illness." Today is our day to be visible. To share our stories and help people understand, that just because you don't look sick, it doesn't mean you aren't. It's something I think about every time we go to town or do any… Continue reading June 6th: Day of Visibility!
They say you shouldn't blog when you're angry. And I'm angry. Probably mostly from the amount of Ritalin I've taken today, but also a lot of built up anger. Built up over years. I need you people, my family, to understand something. And it seems like, with one exception, you don't. What I need you… Continue reading Sick & Tired