Those of us with severe CFS/FMS/chronic Lyme, etc., face some unique choices that the healthy population doesn't face. Anytime we do something, beyond laying in bed or the bare minimum of necessary actions (going to the bathroom, taking the dog out, making a cup of tea), we do it knowing there will be a price… Continue reading Unique Choices
Category: This Crazy Life
There are no words.
The National CFIDS Foundation maintains a Patient Memorial List of people who have died of causes relating to CFS (Chronic Fatigue Syndrome), also known as CFIDS (chronic fatigue and immune dysfunction syndrome) or ME (myalgic encephalomyelitis). They updated the list tonight, and I got notice of that through my Facebook feed. I thought I'd just… Continue reading There are no words.
Self and Self-Destruction
This is where I am tonight; this is what is in my heart & mind: Self: When I was 19, my new husband & I moved to 33 acres of gorgeous land in the foothills of the Blue Ridge. I loved the mountains so much, and wanted to learn about "homesteading." We got a goat… Continue reading Self and Self-Destruction
Pride, Pain and a Reality Check
I wrote at the end of January about the disconnection in my mind between what I can actually do versus what my mind tells me I ought to be able to do. I wrote to myself to "work on that disconnection." I thought I was. But apparently not enough. Tuesday I had to go many… Continue reading Pride, Pain and a Reality Check
The Space Of A Heartbeat
There are some moments that stay frozen in time, frozen in my memory. Moments when everything changed, in the space of a heartbeat: Virginia Beach, 1999. Rhiannon was 4. We were playing in the waves, standing in hip deep water; I was holding her while the waves came in and broke on us. Laughing, giggling.… Continue reading The Space Of A Heartbeat
My New Creative Endevour
I'm pretty sure Rhiannon thinks I've lost what was left of my mind. Or, that the Spring Migration Sickness & it's relentless need for change, any change, has driven me nuts. I have a new creative outlet. A fresh & new medium to play with. Coolest of all is that the canvas is everchanging, ever… Continue reading My New Creative Endevour
Wolfdreams.... 