This Routine is all too familiar. Afternoon sun hits my shaded eyes Like a boxer hitting his opponent. It hurts. I see it coming. This Routine is all too familiar. Dog claws click on floor, Spoon taps bowl, My muscles twitch. I hear its approach. This Routine is all too familiar. Waves of nausea Crash… Continue reading This Routine
Today I want to share something very special with you - a letter my daughter, Rhiannon, wrote to the Social Security Disability Appeals Council, about growing up with a sick mom, and the changes over the last couple of years. She has quite the voice, my daughter. by Rhiannon To whom it may concern: I… Continue reading Guest Post: Rhiannon Tells It Like It Is – to the SSDI Appeals Council
Last week, I saw my LLMD (Lyme Literate MD) again, and left after spending an hour with her, in shock & dismay. Where neither my PCP or neurologist have any ideas really where else to go with my deteriorating health, other than the "band-aid" approach - treating the symptoms as best we can - my… Continue reading Shock and Dismay: Re-visting Tick-Borne Diseases
Laying curled up in bed tonight, I suffered through yet another severe migraine. This time, I asked myself exactly what my body was trying to tell me, and, more importantly, why??? I think I found the answer... Imagine: It is sometime during what is commonly called the Stone Age. Small groups of people, hunter-gatherers, spread… Continue reading Migraines: A Radical New Look At An Evolutionary Advantage
Remember! It will end. Four days and four very long nights I have spent in the deepest, darkest, most silent, depths of migraine hell. Hormonal migraine hell - the "hormonal" part is important, because that's always the worst, most impossible to live through, of the migraine hells. Four days & nights of wearing a blindfold,… Continue reading Notes to Myself on Migraine Hell
My mother said to me the other day that my brother can't seem to wrap his mind around the concept that I'm really sick and there's really very little that can be done about it. He seems to still think that "if I only went to better doctors or the right hospital, they could figure… Continue reading We Know the Enemy, or ME/CFS/FMS Explained Again.