Ash's Advice, Health & ME/CFS

Ash’s Advice: Part 3 – On Doctors

Note: Ash's Advice is written by, me, Ash, a long-time patient with ME/CFS, FMS, Chronic Lyme, etc. I am not a doctor, and nothing written here should be construed as medical advice. These are simply my musings; a series of letters to my younger self, and to anyone suffering through the "living death" that is… Continue reading Ash’s Advice: Part 3 – On Doctors

Health & ME/CFS, This Crazy Life

“How Do You Do It?”

"How do you do it?" she asked. "Just how do you manage to keep it together in spite of how miserably sick you often are? It is just so hard to keep doing this, you know?" It is a question I get asked often, and there are a number of answers. First, a rundown of… Continue reading “How Do You Do It?”

Health & ME/CFS, This Crazy Life

Positive/Magical Thinking, Reality, Acceptance, Goals and Dreams

ME/CFS patients are often under a great deal of pressure to "stay positive" and told to "visualize yourself healthy and strong again, and you will be." This type of "magical thinking" puts an unfair burden on a person who is already suffering terribly. If they do not improve, then they may be blamed by others… Continue reading Positive/Magical Thinking, Reality, Acceptance, Goals and Dreams

Health & ME/CFS, This Crazy Life

Adrenal Dump: From Wolf to Quivering Rabbit

Note: Yesterday I miscalculated when & how much to eat, was caught off-guard by The Hunger, and wound up having two adrenal (adrenaline) dumps. One was while sitting in the car in front of the grocery store. This is the story of what I experienced. I'm sharing this because I know there are many ME/CFS… Continue reading Adrenal Dump: From Wolf to Quivering Rabbit

Health & ME/CFS, This Crazy Life

Lightbulb Moments: Topamax, Meds, Starvation and Adrenal Issues

The past few days have seen two important "lightbulb" moments happen for me, which I'm sharing here because I know many of my fellow patients are facing similar problems and on similar meds... The ER Visit The Wasn't: Late yesterday afternoon, I started feeling decidely "off," even for me. I was brewing a hormonal migraine,… Continue reading Lightbulb Moments: Topamax, Meds, Starvation and Adrenal Issues

Health & ME/CFS, Migraines, This Crazy Life

Teetering

For some time now, since the "protein wasting," also called muscle wasting, and unintentional, major weight loss started, two years ago or so, we've been refering to my overall health status as "precariously balanced." When I say "we," I don't just mean Rhiannon & I, but also, my doctors. We are a team, working collaboratively… Continue reading Teetering