Each day, I wake up & it's the same, always the same: Make tea. Eat a Larabar or Luna Bar. Must have padding in there. For what's to come. The meds, and there are so many of them. They're sneaky. You start out with just one, but then over time, more get added: Lyrica: Big-Pharma's… Continue reading How Did This Happen?
Tag: illness
Ash’s Advice: Part One of Many To Come
Recently, friends have suggested that though I may be sick in body, I'm still a good writer, and that maybe through my writing I could find a way to help other people, especially other women, who are going through the trials and tribulations of chronic illness, whether it's called: Chronic Fatigue Syndrome (CFS) Myalgic Encephalomyelitis… Continue reading Ash’s Advice: Part One of Many To Come
There are no words.
The National CFIDS Foundation maintains a Patient Memorial List of people who have died of causes relating to CFS (Chronic Fatigue Syndrome), also known as CFIDS (chronic fatigue and immune dysfunction syndrome) or ME (myalgic encephalomyelitis). They updated the list tonight, and I got notice of that through my Facebook feed. I thought I'd just… Continue reading There are no words.
Self and Self-Destruction
This is where I am tonight; this is what is in my heart & mind: Self: When I was 19, my new husband & I moved to 33 acres of gorgeous land in the foothills of the Blue Ridge. I loved the mountains so much, and wanted to learn about "homesteading." We got a goat… Continue reading Self and Self-Destruction
Pride, Pain and a Reality Check
I wrote at the end of January about the disconnection in my mind between what I can actually do versus what my mind tells me I ought to be able to do. I wrote to myself to "work on that disconnection." I thought I was. But apparently not enough. Tuesday I had to go many… Continue reading Pride, Pain and a Reality Check
The Aftermath
There is a part of my life that only one person sees and understands: Rhiannon. I call it "The Aftermath." Today we ran errands. We left at 3:30 & were home by 7. Three and a half hours, made possible by ritalin (a stimulant to give me a false sense of being functional) and my… Continue reading The Aftermath