The National CFIDS Foundation maintains a Patient Memorial List of people who have died of causes relating to CFS (Chronic Fatigue Syndrome), also known as CFIDS (chronic fatigue and immune dysfunction syndrome) or ME (myalgic encephalomyelitis). They updated the list tonight, and I got notice of that through my Facebook feed. I thought I'd just… Continue reading There are no words.
Tag: FMS
Self and Self-Destruction
This is where I am tonight; this is what is in my heart & mind: Self: When I was 19, my new husband & I moved to 33 acres of gorgeous land in the foothills of the Blue Ridge. I loved the mountains so much, and wanted to learn about "homesteading." We got a goat… Continue reading Self and Self-Destruction
The Aftermath
There is a part of my life that only one person sees and understands: Rhiannon. I call it "The Aftermath." Today we ran errands. We left at 3:30 & were home by 7. Three and a half hours, made possible by ritalin (a stimulant to give me a false sense of being functional) and my… Continue reading The Aftermath
Counting the Blessings of 2010
This Christmas Eve, I'm counting my blessings - these are the gifts I've received this year: My mother became very ill, but is thankfully recovered from her two hospitalizations and surgery, and is getting her heart issues sorted out. I'd be lost without her, so I'm so glad she's still around! And, in the process… Continue reading Counting the Blessings of 2010
Health Update: The Knee From Hades
So, I saw the orthopedist yesterday. I suppose there was a little good news, along with the bad. The good: there is no sign of bone infection as the cause of the increased pain I'm having. The bad: the knee is continuing it's disintegration from "severe degenerative arthritis" which all goes back to several injuries,… Continue reading Health Update: The Knee From Hades
Sick & Tired
They say you shouldn't blog when you're angry. And I'm angry. Probably mostly from the amount of Ritalin I've taken today, but also a lot of built up anger. Built up over years. I need you people, my family, to understand something. And it seems like, with one exception, you don't. What I need you… Continue reading Sick & Tired
Wolfdreams.... 