Life with CFS/FMS/chronic Lyme and other Neuro-Immune Diseases tends to eventually become incredibly boring, as your health declines steadily, more problems erupt, and you find yourself confined more and more often to bed, isolated, in pain, sick & tired. Memories fade, the months become years, and pass in a haze of misery. But sometimes, things… Continue reading June: Tumultuous Times
Standing naked, I gaze into the mirror. So many changes have happened to my body, I barely recognize the person who stares out at me. Time and illness have taken their toll. I will be 48 years old this month. Late forties. Almost fifty. My mind struggles to wrap itself around the concept. There is… Continue reading The Stranger In The Mirror
Note: Ash's Advice is written by, me, Ash, a long-time patient with CFS/CFIDS/FMS/Chronic Lyme, etc. I am not a doctor, and nothing written here should be construed as medical advice. These are simply my musings - what I wish I was able to tell my younger, healthier self: the person I was before CFS/FMS pretty… Continue reading Ash’s Advice: Part 2 – Your Life Is In YOUR Hands
It's mildly ironic - yesterday I blogged about my meds and my occasional dismay with my personal pharmacy. I just got the word we've all been anxiously awaiting, and it means a decision on more meds. Yes, you might have guessed it. XMRV Positive. (click for more info on the test) The viral load was… Continue reading That Sinking Feeling
Each day, I wake up & it's the same, always the same: Make tea. Eat a Larabar or Luna Bar. Must have padding in there. For what's to come. The meds, and there are so many of them. They're sneaky. You start out with just one, but then over time, more get added: Lyrica: Big-Pharma's… Continue reading How Did This Happen?
Recently, friends have suggested that though I may be sick in body, I'm still a good writer, and that maybe through my writing I could find a way to help other people, especially other women, who are going through the trials and tribulations of chronic illness, whether it's called: Chronic Fatigue Syndrome (CFS) Myalgic Encephalomyelitis… Continue reading Ash’s Advice: Part One of Many To Come