Today I want to share something very special with you - a letter my daughter, Rhiannon, wrote to the Social Security Disability Appeals Council, about growing up with a sick mom, and the changes over the last couple of years. She has quite the voice, my daughter. by Rhiannon To whom it may concern: I… Continue reading Guest Post: Rhiannon Tells It Like It Is – to the SSDI Appeals Council
Tag: chronic pain
We Know the Enemy, or ME/CFS/FMS Explained Again.
Wee little note - this is out of date. I started this blog in 2010, for my family for the most part. To help them understand my illness, and help me work out my thoughts on it and also other matters. Since 2010 I've learned a lot of things about the nature of my illness,… Continue reading We Know the Enemy, or ME/CFS/FMS Explained Again.
The Harsh Reality of CFS
Note: On Monday I wrote three messages to my mother, in typical Aspie style - I held nothing back. I've clipped a bit here, but it's mostly intact. I'm posting it here in case you want to know what it's really like. Be forewarned: my mother spent two days in the hospital after reading this… Continue reading The Harsh Reality of CFS
June: Tumultuous Times
Life with CFS/FMS/chronic Lyme and other Neuro-Immune Diseases tends to eventually become incredibly boring, as your health declines steadily, more problems erupt, and you find yourself confined more and more often to bed, isolated, in pain, sick & tired. Memories fade, the months become years, and pass in a haze of misery. But sometimes, things… Continue reading June: Tumultuous Times
The Stranger In The Mirror
Standing naked, I gaze into the mirror. So many changes have happened to my body, I barely recognize the person who stares out at me. Time and illness have taken their toll. I will be 48 years old this month. Late forties. Almost fifty. My mind struggles to wrap itself around the concept. There is… Continue reading The Stranger In The Mirror
June 6th: Day of Visibility!
Today is the annual International Day of Visibility for people living with "invisible illness." Today is our day to be visible. To share our stories and help people understand, that just because you don't look sick, it doesn't mean you aren't. It's something I think about every time we go to town or do any… Continue reading June 6th: Day of Visibility!
Wolfdreams.... 