I recently hit the 2 year anniversary since I started taking Valcyte for my ME/CFS. The post I wrote detailing my decision to start on Valcyte, a pretty risky drug as drugs go, is still one of the most visited posts on my blog. That post was written Feb. 10, 2011: Valcyte: The (Slightly) Scary… Continue reading Valcyte for ME/CFS: 2nd Anniversary Recap!
Tag: CFS
Coping: One Breath, One Moment
A post about getting through those moments you ask yourself: "What fresh hell is this?", or beg, "Not again, please!" and, "When Food Is The Enemy" Recently, yesterday I guess it was, but it seems eons ago, I managed to poison myself. Not in the typical, swallow something toxic way, of course. No, not me.… Continue reading Coping: One Breath, One Moment
Ash’s Advice: Part 3 – On Doctors
Note: Ash's Advice is written by, me, Ash, a long-time patient with ME/CFS, FMS, Chronic Lyme, etc. I am not a doctor, and nothing written here should be construed as medical advice. These are simply my musings; a series of letters to my younger self, and to anyone suffering through the "living death" that is… Continue reading Ash’s Advice: Part 3 – On Doctors
“How Do You Do It?”
"How do you do it?" she asked. "Just how do you manage to keep it together in spite of how miserably sick you often are? It is just so hard to keep doing this, you know?" It is a question I get asked often, and there are a number of answers. First, a rundown of… Continue reading “How Do You Do It?”
A Kick In The Face
Warning: there will be foul words in this post. I don't use them often, but this is just the final straw. Venting ahead... As you, my friends, know, this Summer has been hell. Things got even "hotter" yesterday with the delivery of a letter from social security - and it wasn't the kind of letter… Continue reading A Kick In The Face
Positive/Magical Thinking, Reality, Acceptance, Goals and Dreams
ME/CFS patients are often under a great deal of pressure to "stay positive" and told to "visualize yourself healthy and strong again, and you will be." This type of "magical thinking" puts an unfair burden on a person who is already suffering terribly. If they do not improve, then they may be blamed by others… Continue reading Positive/Magical Thinking, Reality, Acceptance, Goals and Dreams
Wolfdreams.... 