Earlier this week, a Facebook page I "Like" put up a pic that seemed to have been written by a fellow ME/CFS/FMS patient. I'd show it to you, but it appears to have been removed, likely because it was a little too honest. EDIT: thanks to Barbara, I have it! The response to this was… Continue reading When Its Not All Puppies and Kittens
Just for Tonight, And Maybe Tomorrow
Note: This is not the post I've been meaning to finish, the deep & touching one. That will come when it will... "Brown hair zig-zag around her face and a look of half-surprise Like a fox caught in the headlights, there was animal in her eyes..." "Oh she was a rare thing, fine as a… Continue reading Just for Tonight, And Maybe Tomorrow
We Know the Enemy, or ME/CFS/FMS Explained Again.
Wee little note - this is out of date. I started this blog in 2010, for my family for the most part. To help them understand my illness, and help me work out my thoughts on it and also other matters. Since 2010 I've learned a lot of things about the nature of my illness,… Continue reading We Know the Enemy, or ME/CFS/FMS Explained Again.
Acceptance: Clarity Comes In Darkness
Clarity, that feeling of peace inside, of comprehension, of acceptance of what is and what will be, often comes in our darkest hour, or in darkness itself. It hides from the light of day, and waits for the dark of night, before revealing itself to us. We grasp it gently, lest it be lost, and… Continue reading Acceptance: Clarity Comes In Darkness
The Harsh Reality of CFS
Note: On Monday I wrote three messages to my mother, in typical Aspie style - I held nothing back. I've clipped a bit here, but it's mostly intact. I'm posting it here in case you want to know what it's really like. Be forewarned: my mother spent two days in the hospital after reading this… Continue reading The Harsh Reality of CFS
Always Counting Spoons
Yesterday, a dear friend shared something with me that touched me so deeply that, for a time, I was wordless, unable to express the complex emotions roiling around inside. For the rest of this post to make sense, I need you to read it, too. Really. It's long, and about lupus, but you can insert… Continue reading Always Counting Spoons
Wolfdreams.... 