Today is the annual International Day of Visibility for people living with "invisible illness." Today is our day to be visible. To share our stories and help people understand, that just because you don't look sick, it doesn't mean you aren't. It's something I think about every time we go to town or do any… Continue reading June 6th: Day of Visibility!
Category: Health & ME/CFS
Not Simple At All
My mother has written the words, "Life can be very complicated..." several times on my blog as a comment. Yes, Mom, life can indeed be very complicated, as I've learned throughout the years. Some things seem simple, or like they should be simple, but then they turn out to be very complicated. It seemed simple,… Continue reading Not Simple At All
Rush…Thump.
(I wrote this on 5/19/11 and then forgot all about it - but I quite like it! And posting it tonight is very appropriate, as storms are building, causing a repeat.) I am listening to my heartbeat. Rush... Thump. Rush... Thump. It goes on endlessly. I need no stethoscope, no ultrasound. Rush... Thump. Rush... Thump.… Continue reading Rush…Thump.
In Which I Explain and Complain a Lot
There have been a number of questions friends have been asking that haven't gotten answered, so here goes, in no particular order: Disability: I have appealed my Disability rejection to the highest level in Social Security, about two months ago. They can take a long, long, time to rule on things, apparently - up to… Continue reading In Which I Explain and Complain a Lot
Ash’s Advice: Part 2 – Your Life Is In YOUR Hands
Note: Ash's Advice is written by, me, Ash, a long-time patient with CFS/CFIDS/FMS/Chronic Lyme, etc. I am not a doctor, and nothing written here should be construed as medical advice. These are simply my musings - what I wish I was able to tell my younger, healthier self: the person I was before CFS/FMS pretty… Continue reading Ash’s Advice: Part 2 – Your Life Is In YOUR Hands
Unique Choices
Those of us with severe CFS/FMS/chronic Lyme, etc., face some unique choices that the healthy population doesn't face. Anytime we do something, beyond laying in bed or the bare minimum of necessary actions (going to the bathroom, taking the dog out, making a cup of tea), we do it knowing there will be a price… Continue reading Unique Choices
Wolfdreams.... 