Note: On Monday I wrote three messages to my mother, in typical Aspie style - I held nothing back. I've clipped a bit here, but it's mostly intact. I'm posting it here in case you want to know what it's really like. Be forewarned: my mother spent two days in the hospital after reading this… Continue reading The Harsh Reality of CFS
Category: Health & ME/CFS
Always Counting Spoons
Yesterday, a dear friend shared something with me that touched me so deeply that, for a time, I was wordless, unable to express the complex emotions roiling around inside. For the rest of this post to make sense, I need you to read it, too. Really. It's long, and about lupus, but you can insert… Continue reading Always Counting Spoons
The End Of Chocolate, And Why I’ve Been Quiet
Note: This is long, but kind of has to be as it covers a lot of ground - it's about the past, the present, how the body works, and why I've been so quiet. This Halloween, there will be no chocolate for me; no Halloween goodies. An "old friend" (and I use that term very… Continue reading The End Of Chocolate, And Why I’ve Been Quiet
Still, Surreal, and Chocolate
I just hopped onto my blog searching for some info on my Lyrica dosage and weight, as I'm about to go see my LLMD/rheumatologist, whom I haven't seen in almost a year. While sorting through the mess in my room, asking myself why on Earth I don't actually file important info like my old labs… Continue reading Still, Surreal, and Chocolate
June: Tumultuous Times
Life with CFS/FMS/chronic Lyme and other Neuro-Immune Diseases tends to eventually become incredibly boring, as your health declines steadily, more problems erupt, and you find yourself confined more and more often to bed, isolated, in pain, sick & tired. Memories fade, the months become years, and pass in a haze of misery. But sometimes, things… Continue reading June: Tumultuous Times
Health Update: Cortisone, Candida and Cramps
Some of my dear friends have been asking if I'm okay, noticing that I've been quiet on Facebook as well as here. Okay is a relative term, when dealing with CFS/FMS. But the last couple weeks have been very challenging, as I forgot my own advice: You may have some of the more rare side… Continue reading Health Update: Cortisone, Candida and Cramps
Wolfdreams.... 