"How do you do it?" she asked. "Just how do you manage to keep it together in spite of how miserably sick you often are? It is just so hard to keep doing this, you know?" It is a question I get asked often, and there are a number of answers. First, a rundown of… Continue reading “How Do You Do It?”
Category: Health & ME/CFS
A Kick In The Face
Warning: there will be foul words in this post. I don't use them often, but this is just the final straw. Venting ahead... As you, my friends, know, this Summer has been hell. Things got even "hotter" yesterday with the delivery of a letter from social security - and it wasn't the kind of letter… Continue reading A Kick In The Face
Positive/Magical Thinking, Reality, Acceptance, Goals and Dreams
ME/CFS patients are often under a great deal of pressure to "stay positive" and told to "visualize yourself healthy and strong again, and you will be." This type of "magical thinking" puts an unfair burden on a person who is already suffering terribly. If they do not improve, then they may be blamed by others… Continue reading Positive/Magical Thinking, Reality, Acceptance, Goals and Dreams
Adrenal Dump: From Wolf to Quivering Rabbit
Note: Yesterday I miscalculated when & how much to eat, was caught off-guard by The Hunger, and wound up having two adrenal (adrenaline) dumps. One was while sitting in the car in front of the grocery store. This is the story of what I experienced. I'm sharing this because I know there are many ME/CFS… Continue reading Adrenal Dump: From Wolf to Quivering Rabbit
Lightbulb Moments: Topamax, Meds, Starvation and Adrenal Issues
The past few days have seen two important "lightbulb" moments happen for me, which I'm sharing here because I know many of my fellow patients are facing similar problems and on similar meds... The ER Visit The Wasn't: Late yesterday afternoon, I started feeling decidely "off," even for me. I was brewing a hormonal migraine,… Continue reading Lightbulb Moments: Topamax, Meds, Starvation and Adrenal Issues
Teetering
For some time now, since the "protein wasting," also called muscle wasting, and unintentional, major weight loss started, two years ago or so, we've been refering to my overall health status as "precariously balanced." When I say "we," I don't just mean Rhiannon & I, but also, my doctors. We are a team, working collaboratively… Continue reading Teetering
Wolfdreams.... 