ME/CFS patients are often under a great deal of pressure to "stay positive" and told to "visualize yourself healthy and strong again, and you will be." This type of "magical thinking" puts an unfair burden on a person who is already suffering terribly. If they do not improve, then they may be blamed by others… Continue reading Positive/Magical Thinking, Reality, Acceptance, Goals and Dreams
Tag: ME/CFS
Adrenal Dump: From Wolf to Quivering Rabbit
Note: Yesterday I miscalculated when & how much to eat, was caught off-guard by The Hunger, and wound up having two adrenal (adrenaline) dumps. One was while sitting in the car in front of the grocery store. This is the story of what I experienced. I'm sharing this because I know there are many ME/CFS… Continue reading Adrenal Dump: From Wolf to Quivering Rabbit
Lightbulb Moments: Topamax, Meds, Starvation and Adrenal Issues
The past few days have seen two important "lightbulb" moments happen for me, which I'm sharing here because I know many of my fellow patients are facing similar problems and on similar meds... The ER Visit The Wasn't: Late yesterday afternoon, I started feeling decidely "off," even for me. I was brewing a hormonal migraine,… Continue reading Lightbulb Moments: Topamax, Meds, Starvation and Adrenal Issues
Teetering
For some time now, since the "protein wasting," also called muscle wasting, and unintentional, major weight loss started, two years ago or so, we've been refering to my overall health status as "precariously balanced." When I say "we," I don't just mean Rhiannon & I, but also, my doctors. We are a team, working collaboratively… Continue reading Teetering
And Then, Everything Changed, Part 1
The last 6 weeks or so have seen some massive changes happen in my life, some for the better, some for the (much) worse. I had planned a nice long post detailing the adrenal exhaustion, stage 3, I was diagnosed with, and how that is so common in my fellow ME/CFS patients, but since I'm… Continue reading And Then, Everything Changed, Part 1
Risky Decisions, or, Valcyte: the Very Scary Adventure Ends
I've had the great blessing to meet (online) a lot of ME/CFS and Lyme/TBD (Tick-Borne Disease) patients. Many have become friends. I believe, taken as a whole, that this patient group has got to be the most medically-literate patient group around. We have to be. There are few doctors who have a clue what these… Continue reading Risky Decisions, or, Valcyte: the Very Scary Adventure Ends
Wolfdreams.... 