I wrote at the end of January about the disconnection in my mind between what I can actually do versus what my mind tells me I ought to be able to do. I wrote to myself to "work on that disconnection." I thought I was. But apparently not enough. Tuesday I had to go many… Continue reading Pride, Pain and a Reality Check
Tag: CFS
The Aftermath
There is a part of my life that only one person sees and understands: Rhiannon. I call it "The Aftermath." Today we ran errands. We left at 3:30 & were home by 7. Three and a half hours, made possible by ritalin (a stimulant to give me a false sense of being functional) and my… Continue reading The Aftermath
Valcyte: The (Slightly) Scary Adventure Begins
(Interested in how this adventure turned out? See my 2nd anniversary recap to find out!) Yesterday evening, I picked up my prescription for a new medication, Valcyte. Valcyte is an anti-viral, similar to Valtrex, which I've taken for years. Both are effective against all the viruses in the Herpes family, and there are a lot… Continue reading Valcyte: The (Slightly) Scary Adventure Begins
The Why of “Wrapped In Agony”
So you know... I wrote the previous post, "Wrapped In Agony", while in the worst part of a very bad migraine. Wearing sunglasses, just as I am wearing them now. Because the migraine is not done with me yet, though it's not as bad as it was last night. If you have never had a… Continue reading The Why of “Wrapped In Agony”
Little White Lies
Everyone tells them - the "little white lies." Right? Maybe. Little white lies have been on my mind today. They aren't the same for me as they are for you. I have Asperger's, and part of Asperger's is an "inappropriate" attachment to the "truth" and "honesty." And a difficulty detecting - or anticipating - deceit… Continue reading Little White Lies
Counting the Blessings of 2010
This Christmas Eve, I'm counting my blessings - these are the gifts I've received this year: My mother became very ill, but is thankfully recovered from her two hospitalizations and surgery, and is getting her heart issues sorted out. I'd be lost without her, so I'm so glad she's still around! And, in the process… Continue reading Counting the Blessings of 2010
Wolfdreams.... 