Those of us with severe CFS/FMS/chronic Lyme, etc., face some unique choices that the healthy population doesn't face. Anytime we do something, beyond laying in bed or the bare minimum of necessary actions (going to the bathroom, taking the dog out, making a cup of tea), we do it knowing there will be a price… Continue reading Unique Choices
Tag: CFS
That Sinking Feeling
It's mildly ironic - yesterday I blogged about my meds and my occasional dismay with my personal pharmacy. I just got the word we've all been anxiously awaiting, and it means a decision on more meds. Yes, you might have guessed it. XMRV Positive. (click for more info on the test) The viral load was… Continue reading That Sinking Feeling
How Did This Happen?
Each day, I wake up & it's the same, always the same: Make tea. Eat a Larabar or Luna Bar. Must have padding in there. For what's to come. The meds, and there are so many of them. They're sneaky. You start out with just one, but then over time, more get added: Lyrica: Big-Pharma's… Continue reading How Did This Happen?
Ash’s Advice: Part One of Many To Come
Recently, friends have suggested that though I may be sick in body, I'm still a good writer, and that maybe through my writing I could find a way to help other people, especially other women, who are going through the trials and tribulations of chronic illness, whether it's called: Chronic Fatigue Syndrome (CFS) Myalgic Encephalomyelitis… Continue reading Ash’s Advice: Part One of Many To Come
There are no words.
The National CFIDS Foundation maintains a Patient Memorial List of people who have died of causes relating to CFS (Chronic Fatigue Syndrome), also known as CFIDS (chronic fatigue and immune dysfunction syndrome) or ME (myalgic encephalomyelitis). They updated the list tonight, and I got notice of that through my Facebook feed. I thought I'd just… Continue reading There are no words.
Self and Self-Destruction
This is where I am tonight; this is what is in my heart & mind: Self: When I was 19, my new husband & I moved to 33 acres of gorgeous land in the foothills of the Blue Ridge. I loved the mountains so much, and wanted to learn about "homesteading." We got a goat… Continue reading Self and Self-Destruction
Wolfdreams.... 