Note: Yesterday I miscalculated when & how much to eat, was caught off-guard by The Hunger, and wound up having two adrenal (adrenaline) dumps. One was while sitting in the car in front of the grocery store. This is the story of what I experienced. I'm sharing this because I know there are many ME/CFS… Continue reading Adrenal Dump: From Wolf to Quivering Rabbit
Tag: CFS
Lightbulb Moments: Topamax, Meds, Starvation and Adrenal Issues
The past few days have seen two important "lightbulb" moments happen for me, which I'm sharing here because I know many of my fellow patients are facing similar problems and on similar meds... The ER Visit The Wasn't: Late yesterday afternoon, I started feeling decidely "off," even for me. I was brewing a hormonal migraine,… Continue reading Lightbulb Moments: Topamax, Meds, Starvation and Adrenal Issues
Teetering
For some time now, since the "protein wasting," also called muscle wasting, and unintentional, major weight loss started, two years ago or so, we've been refering to my overall health status as "precariously balanced." When I say "we," I don't just mean Rhiannon & I, but also, my doctors. We are a team, working collaboratively… Continue reading Teetering
And Then, Everything Changed, Part 1
The last 6 weeks or so have seen some massive changes happen in my life, some for the better, some for the (much) worse. I had planned a nice long post detailing the adrenal exhaustion, stage 3, I was diagnosed with, and how that is so common in my fellow ME/CFS patients, but since I'm… Continue reading And Then, Everything Changed, Part 1
Guest Post: Rhiannon Tells It Like It Is – to the SSDI Appeals Council
Today I want to share something very special with you - a letter my daughter, Rhiannon, wrote to the Social Security Disability Appeals Council, about growing up with a sick mom, and the changes over the last couple of years. She has quite the voice, my daughter. by Rhiannon To whom it may concern: I… Continue reading Guest Post: Rhiannon Tells It Like It Is – to the SSDI Appeals Council
Risky Decisions, or, Valcyte: the Very Scary Adventure Ends
I've had the great blessing to meet (online) a lot of ME/CFS and Lyme/TBD (Tick-Borne Disease) patients. Many have become friends. I believe, taken as a whole, that this patient group has got to be the most medically-literate patient group around. We have to be. There are few doctors who have a clue what these… Continue reading Risky Decisions, or, Valcyte: the Very Scary Adventure Ends
Wolfdreams.... 