The past few days have seen two important "lightbulb" moments happen for me, which I'm sharing here because I know many of my fellow patients are facing similar problems and on similar meds... The ER Visit The Wasn't: Late yesterday afternoon, I started feeling decidely "off," even for me. I was brewing a hormonal migraine,… Continue reading Lightbulb Moments: Topamax, Meds, Starvation and Adrenal Issues
Category: This Crazy Life
Teetering
For some time now, since the "protein wasting," also called muscle wasting, and unintentional, major weight loss started, two years ago or so, we've been refering to my overall health status as "precariously balanced." When I say "we," I don't just mean Rhiannon & I, but also, my doctors. We are a team, working collaboratively… Continue reading Teetering
There, And Back Again
It seems that for us, "when it rains, it hurricanes," as one friend put it. As most of you know, Rhiannon's father passed away last week, and we embarked on a daring (for us) journey to Ohio, & back. I want to thank all of you who have sent messages of love & support to… Continue reading There, And Back Again
And Then, Everything Changed, Part 1
The last 6 weeks or so have seen some massive changes happen in my life, some for the better, some for the (much) worse. I had planned a nice long post detailing the adrenal exhaustion, stage 3, I was diagnosed with, and how that is so common in my fellow ME/CFS patients, but since I'm… Continue reading And Then, Everything Changed, Part 1
Guest Post: Rhiannon Tells It Like It Is – to the SSDI Appeals Council
Today I want to share something very special with you - a letter my daughter, Rhiannon, wrote to the Social Security Disability Appeals Council, about growing up with a sick mom, and the changes over the last couple of years. She has quite the voice, my daughter. by Rhiannon To whom it may concern: I… Continue reading Guest Post: Rhiannon Tells It Like It Is – to the SSDI Appeals Council
Funny Blender Mishaps, Past and Present
A little change of pace from the seriousness of recent posts... A Long Time Ago... Let's see, must have been about 31 years ago, I was in the midst of a teenage melt-down, and went from being the-child-terrified-of-doing-anything-wrong to a smoking, drinking, partying crazy person. My parents were newly divorced, and my mom & I… Continue reading Funny Blender Mishaps, Past and Present
Wolfdreams.... 