It's mildly ironic - yesterday I blogged about my meds and my occasional dismay with my personal pharmacy. I just got the word we've all been anxiously awaiting, and it means a decision on more meds. Yes, you might have guessed it. XMRV Positive. (click for more info on the test) The viral load was… Continue reading That Sinking Feeling
Category: Health & ME/CFS
How Did This Happen?
Each day, I wake up & it's the same, always the same: Make tea. Eat a Larabar or Luna Bar. Must have padding in there. For what's to come. The meds, and there are so many of them. They're sneaky. You start out with just one, but then over time, more get added: Lyrica: Big-Pharma's… Continue reading How Did This Happen?
Ash’s Advice: Part One of Many To Come
Recently, friends have suggested that though I may be sick in body, I'm still a good writer, and that maybe through my writing I could find a way to help other people, especially other women, who are going through the trials and tribulations of chronic illness, whether it's called: Chronic Fatigue Syndrome (CFS) Myalgic Encephalomyelitis… Continue reading Ash’s Advice: Part One of Many To Come
Strange Lessons
I have learned some strange lessons in the last week or two. These likely only apply to me, but I'm putting them up here as kind of a "note to self" since the short-term memory loss is pretty bad and I'll surely forget, otherwise. 1. Fioricet. I've tried nearly every migraine medication there is. For… Continue reading Strange Lessons
There are no words.
The National CFIDS Foundation maintains a Patient Memorial List of people who have died of causes relating to CFS (Chronic Fatigue Syndrome), also known as CFIDS (chronic fatigue and immune dysfunction syndrome) or ME (myalgic encephalomyelitis). They updated the list tonight, and I got notice of that through my Facebook feed. I thought I'd just… Continue reading There are no words.
Pride, Pain and a Reality Check
I wrote at the end of January about the disconnection in my mind between what I can actually do versus what my mind tells me I ought to be able to do. I wrote to myself to "work on that disconnection." I thought I was. But apparently not enough. Tuesday I had to go many… Continue reading Pride, Pain and a Reality Check
Wolfdreams.... 