The last 6 weeks or so have seen some massive changes happen in my life, some for the better, some for the (much) worse. I had planned a nice long post detailing the adrenal exhaustion, stage 3, I was diagnosed with, and how that is so common in my fellow ME/CFS patients, but since I'm… Continue reading And Then, Everything Changed, Part 1
Category: Health & ME/CFS
This Routine
This Routine is all too familiar. Afternoon sun hits my shaded eyes Like a boxer hitting his opponent. It hurts. I see it coming. This Routine is all too familiar. Dog claws click on floor, Spoon taps bowl, My muscles twitch. I hear its approach. This Routine is all too familiar. Waves of nausea Crash… Continue reading This Routine
Guest Post: Rhiannon Tells It Like It Is – to the SSDI Appeals Council
Today I want to share something very special with you - a letter my daughter, Rhiannon, wrote to the Social Security Disability Appeals Council, about growing up with a sick mom, and the changes over the last couple of years. She has quite the voice, my daughter. by Rhiannon To whom it may concern: I… Continue reading Guest Post: Rhiannon Tells It Like It Is – to the SSDI Appeals Council
Risky Decisions, or, Valcyte: the Very Scary Adventure Ends
I've had the great blessing to meet (online) a lot of ME/CFS and Lyme/TBD (Tick-Borne Disease) patients. Many have become friends. I believe, taken as a whole, that this patient group has got to be the most medically-literate patient group around. We have to be. There are few doctors who have a clue what these… Continue reading Risky Decisions, or, Valcyte: the Very Scary Adventure Ends
Earthing: A Simple Healing Experiment Begins
I've just come inside after spending an hour or so chained to the ground.... (Do I have your attention?) Its not quite what I'm sure you've just imagined. I was "chained" with a silver chain, wrapped around my ankle, that was itself connected to a electrical ground wire that led to a grounding post in… Continue reading Earthing: A Simple Healing Experiment Begins
Shock and Dismay: Re-visting Tick-Borne Diseases
Last week, I saw my LLMD (Lyme Literate MD) again, and left after spending an hour with her, in shock & dismay. Where neither my PCP or neurologist have any ideas really where else to go with my deteriorating health, other than the "band-aid" approach - treating the symptoms as best we can - my… Continue reading Shock and Dismay: Re-visting Tick-Borne Diseases
Wolfdreams.... 